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Steering Committee

The Steering Committee is composed by:

  • ENROL Consortium
  • Domain disease experts
  • ERN-EuroBloodNet Coordinators on research and guidelines working groups
  • ePAGs (or other patients advocate if there is no ePAG)
  • IT specialist
  • Platform manager

Steering Committee main roles are:

  • To define ENROL's general protocol
  • To define research protocol and common & domain specific data set for RHDs respecting the principle of data minimization
  • Establishing formal collaborations of ENROL
  • Drafting ENROL Data Access Policy
  • To establish the rules for peer-review publications
  • Supervises the security and confidentiality of data held including data transmission

Euro Blood Net