The Rare Anaemias Disorders European Epidemiological Platform (RADeep) is currently being implemented as a joint venture conceived in the core of ERN-EuroBloodNet to become an umbrella for both new and already existing European patients’ registries in rare anaemias (RAs). RADeep is being implemented in different phases through disease specific arms, thus, there are a number of actions that need to be done as transversal issues for their implementation. These tasks are done by the core team of RADeep:
For each disease specific arm, a scientific committee will be established including experts on the prevention, diagnosis and clinical care of the disease, researchers, and national coordinators for data gathering. RADeep phases of implementation (foreseen) are:
In this context, we are very happy to anounce the launch of RADeep website! We invite you to visit and learn more about the platform at: www.radeepnetwork.eu