Register for the workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members"

The online workshop is co-organized by the EJP RD and ERICA.

The European Joint Programme on Rare Diseases (EJP RD) invites you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members".

This workshop is jointly organised by ERICA and EJP RD and will take place online on 30th June from 10 am to 12:30 pm.

It primarily aims to train the members of the ERNs Data Access Committee members on the legal and ethical aspects to consider when examining an incoming data access request. All other interested stakeholders are welcome to join.

You will find further information on the official website.

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