The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions from 35 countries to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.
In the specific context of the massive generation, need for reuse and efficient interpretation of data, introduction of omics into care practice and the structuration of RD care centers in European Reference Networks, it is crutial to maximize the potential of already funded tools and programmes by supporting them further, scaling up, linking, and adapting them to the needs of end-users through implementation tests in real settings. For this reason, the EJP RD will
In addition, a preliminary announcement has been launched for an internal call (open only for teams from institutions that are beneficiaries of the EJP RD project) on Clinical Trials Methodology Demonstration Projects to evaluate existing innovative statistical methodologies to improve RD clinical trials. The call will be opened February 1st 2020 with a deadline for submission of 1 page until March 15th 2020.