EuroBloodNet is directing several actions to improve the live of patients with rare hematological diseases. Click on each action to discover which Associations are involved:
Creation of an European Patient Advocacy Group (ePAG) of hematological rare diseases patients organizations that are covered by ERN-EuroBloodNet.
Webinar for people living with SCD and dealing with COVID-19 pandemic
Creation and promotion of a network of SCD patients organizations
Spreading patients' needs and expectation during the World Sickle Cell Disease Awareness Day 2020 (WSCD)
Clinical domain where there was a need to establish educational actions on CL for patients and patient organisations
Presentation during the 25th European Hematology Association Annual Congress
Organization of two patients sessions for the 4th Global Congress on Sickle Cell Disease at UNESCO